12/8/09 Update

Thank you so much for all the comments, thoughts, and prayers. The support we’re receiving from everyone is what is getting us through the days, and we’ll never be able to thank you enough.

Jillian has had a good day today. She was moved from one ventilator to another. I can’t really describe the difference, but I do know that this was a step in the right direction. She had a repeat head ultrasound today to check for some bleeding on her brain that was discovered yesterday. The good news is that the bleeding has not gotten any worse. We’re hopeful that the bleed will be absorbed and it won’t cause any problems. She was having issues yesterday with her potassium being too high, and it stayed at good levels today. She also was on room oxygen all day.

While this was all wonderful to hear throughout the day, we have been prepared by all the doctors and nurses that the NICU is a roller coaster, and we’re going to have a lot of ups and downs. Obviously we only want up days, but we’re trying to keep in mind that tomorrow is a different day (without being pessimistic). So I’d say we’re cautious at this point, but we’re definitely feeling more optimistic than we were yesterday, which was the worst day of our lives so far.

As for Jillian herself, we fall in love with her more and more with each passing second. I was able to touch her quite a bit today and put colostrum in her mouth via a cotton swab (Dave was worried that he may be coming down with a cold, so he didn’t touch her at all today). We just returned from visiting her, and she was about as active as I’ve seen her. I kept asking her how much I love her, and she’d stretch her arms out as far as she could reach. Even though I know it was a coincidence (and my asking was a direct result of watching her stretch), playing this game with her was the highlight of my life. She has made me laugh multiple times in the few days that she’s been an outside baby, and I’m hoping with all that I have that this is the beginning of a lifetime of laughs from my Silly Jilly.

16 thoughts on “12/8/09 Update

  1. My son was in the NICU for only a week (which is nothing in comparison) but being in there is definately a rollercoaster. So glad she had a good day and you and Dave are starting to feel better about things. Keep your head up!

  2. So glad to hear she had a good day! She sounds absolutely adorable and so strong!!!

    We're praying for only "up" days, and we're here for you along the ride in any way we can be.

  3. Just want you to know I'm praying for baby Jillian. Thinking of you and hoping tomorrow is another up day.

  4. Here's to hoping you have more good days than bad going forward! So good to hear she is already making you laugh.

  5. I am bawling right now imagining you playing "so big" with Jillian. I had two names for my daughter before she was born (Jillian being one), and was waiting to see her to name her. My whole pregnancy, my family refered to her as our "little Jilly Bean" and though she got the other name, Jilly Bean has stuck. May your Jilly Bean have more ups than downs, and may your family find joy during these trying times.

  6. That's a beautiful story. I hope you have many many years to memories with Jillian.
    Your family continues to be in my prayers.

  7. So glad you had a great day! So glad to hear that you had some fun times with her today. You will have many more laughs I am sure. Glad to hear that she has moved off the other vent. One of Ella's neighbors was on it and it was a happy day when he moved off "the jet"! We all celebrated. Go Jillian! So great that you got to give Jillan some milk. Isn't it so cool how their little lips just squeeze around that q tip! Another day done! keep up the good work everyone!

  8. It sounds like she loves her mommy a ton already. These stories are fantastic! Keep them coming! Tell your little precious sweety that everyone is thinking of her, blow some kisses her way!

  9. Glad to hear that she had a good day today. She's in our thoughts and prayers.

    Jaime, Sean & Logan

  10. I am really praying that you only have up days from here on out! You seem to be dealing with this really well. Your still in my thoughts.

  11. What a cute game you were playing! I hope you play it together a million more times. You, Dave & Jillian continue to be in my thoughts.

  12. I am so glad she had a good day. I am thinking good thoughts for millions more. We all love you.

  13. That is so beautiful and I am so happy that you had a good day. There is no doubt that Jillian really does know how much you and Dave love her. I love you all too! How much? Soooooooooooooo Muuuuuuuuuuuuch!

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